Pain returns

Pads is getting pain this morning above his left eye which is registering about a 6 or 7 out of ten - the highest it has been for a long time. When shining a torch into his eye, the pupil shrinks and then widens again. He's also getting a fuzziness in a patch in his right eye.
Yesterday he could be found reading his inscribed edition of 'John Knox' by John J Murray. He says the print is a good size. This is the first book he's tried to read in ages.
LATCH had organised a trip to the St Fagans Open Air Theatre today, they were doing Pinnochio. Pads preferred to play Risk later with his cousin, but that is now looking unlikely. He was more positive yesterday about the prospect of attending a 'theatrical makeup' course in the near furture, again organised and paid for by LATCH.

Risk

The results of the scan came through yesterday. Pads was due to visit the hospital for a pre-chemo check-up anyway. His bloods are holding up well, he's handling the temozolomide and the dose can safely increase in future if they want it to. Pads was interested to know about the scan findings. We'd looked at the pictures and there was not much change from last time, but change there was: a slight increase in the swelling. The opinion from Birmingham was that the scan was not 'classic medulloblastoma', but it did look more like tumour than radiotherapy changes. Although the 'result' sounded uncertain, so some extent, Pads symptoms have been telling their own story for some time: the consultant did not waste any words telling him. He was ok with it, and went back to playing Risk with Llyr and friends. This game was much enjoyed and had been on the bucket list for some time. However, at dinner, when his left hand was failing him with the cutlery, he became quite upset and took refuge in his room.

Today it was the smalls' school summer fayre and Pads managed to get there for about half an hour. For most of it he sat and did codebreakers, finding the noise and bustle wearing.