Monday, February 18, 2013

All home

Moli's came back from Spain last night and the smalls returned on Saturday. Thus ended a quiet week. Pads did not think it was particularly quiet though, with trips out most days.
The day after coming home from Bluebells, Friday the 8th, we welcomed a colleague of Mike's, another Jane, to the house. She's working on a doctoral study into decision making in teenagers with cancer. Pads seems really taken with this - regularly marvels at how important and helpful this could be. If you think you could help, I'm sure she'd be delighted to hear from you. The ideas are evolving so, although it says 'treatment decision making' on the Cardiff University contact details, I think it's all decisions she's interested in. For example, life planning, Pads will probably never be able to choose to emulate his sister and pop off to Spain... The following day, Saturday, unusually, we'd joined Pads for a long wallow in the hot tub, where conversation soon turns to matters of moment. Pads worries about what he'll do for a living, if he lives... how he'll contribute to society. He doesnt want to be a 'waste of space' - this kind of thing comes washing back every so often. It's not for the faint hearted. All I could say was that many 15 year-olds have the similar concerns. I recommend meditating on Matthew 6:33 'seek ye first the kingdom of God, and his righteousness; and all these things shall be added unto you.' or Proverbs 3:6 'In all thy ways acknowledge him, and he shall direct thy paths.'
Apart from the at the restaurant on Wednesday, he's eaten something most days: enjoyed three pancakes on Shrove Tuesday. On Friday we saw 'Life of Pi' (an awesome spectacle!) before motoring out for dinner with friends in Cwmdare.
The steroid dose is now down to 4mg per day (from 8mg). He took one lot of breakthrough melts yesterday and did not make it out to church, but so far the symptoms have generally been keeping quiet.
Tiger Mama
'Life of Pi' portrays the real menace you would feel if trapped for weeks on a lifeboat with a tiger

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